mercredi 8 janvier 2020

Just to say

Personne ne pourra jamais comprendre la réalité de la vie d'un malade se battant contre une maladie chronique auto-immune . Tu auras toujours droit aux mêmes commentaires : tu es rayonnante ! Tu n'as pas l'air malade car les gens n'arrivent pas à saisir ce genre de maladie ! 
Pour faire bref, une maladie auto-immune, c'est une maladie invalidante qui te ronge de l'intérieur. 
Une maladie te bouffe toute ton énergie et te colle à un lit. C'est aussi des douleurs infernales et des nuits successives d'insomnie, des pertes de poids, des vomissements , de la fièvre ...
Pour concrétiser cela je parlerai d'une petite expérience personnelle.Hier, je suis sortie pour quelques heures , après des jours et des jours de repos obligée à la maison. Le résultat fût horrible. Aujourd'hui, j'en paye le prix . Je me suis réveillée avec des douleurs atroces, des pieds enflés, et j'ai dû passer ma journée au lit.
Hier , j'ai décidé de défier mon corps en participant à un débat autour du don d'organes .Et ce matin tout le monde me félicitait pour la bonne santé . Seuls mes parents pouvaient voir la réalité et sentir ma souffrance et partager mon calvaire.
Une maladie chronique auto-immune c'est une lutte au quotidien. Je ne fais pas semblant et je ne joue pas les victimes . J'ai accompli beaucoup de choses dans ma vie mais il y'a eu toujours un prix très cher à payer. Derrière chaque sourire, il y'a des larmes et des souffrances atroces , des aiguilles , des dizaines et dizaines de comprimés et des journées et journées dans des hôpitaux

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